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The Self-Care Observatory
Self-management of LTCs
Prof Marcelo Demarzo
MD PhD
Prof Jon Adams
BA MA PhD
"Self-care Management of Longer-Term Illness" is a critical focus area dedicated to equipping individuals with the capabilities and knowledge necessary to actively manage chronic conditions, enhancing their autonomy and quality of life. It emphasizes a sustained, personalized approach to self-care, integrating medical guidance with lifestyle adjustments to navigate the complexities of long-term health challenges effectively.
Characteristics of self-management education and support programmes for people with chronic diseases delivered by primary care teams: a rapid review
Allory E, Scheer J, De Andrade V, Garlantézec R, Gagnayre R.
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Allory E, Scheer J, De Andrade V, Garlantézec R, Gagnayre R. Characteristics of self-management education and support programmes for people with chronic diseases delivered by primary care teams: a rapid review. BMC Prim Care. 2024 Jan 31;25(1):46. doi: 10.1186/s12875-024-02262-2. PMID: 38297228; PMCID: PMC10829293.
The Impact of Digital Technology on Self-Management in Cancer: Systematic Review
Lim DSC, Kwok B, Williams P, Koczwara B.
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Lim DSC, Kwok B, Williams P, Koczwara B. The Impact of Digital Technology on Self-Management in Cancer: Systematic Review. JMIR Cancer. 2023 Nov 22;9:e45145. doi: 10.2196/45145. PMID: 37991831; PMCID: PMC10701654.
Use of telemonitoring in patient self-management of chronic disease: a qualitative meta-synthesis
Creber A, Leo DG, Buckley BJR, Chowdhury M, Harrison SL, Isanejad M, Lane DA; TAILOR investigators.
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Citation: Creber A, Leo DG, Buckley BJR, Chowdhury M, Harrison SL, Isanejad M, Lane DA; TAILOR investigators. Use of telemonitoring in patient self-management of chronic disease: a qualitative meta-synthesis. BMC Cardiovasc Disord. 2023 Sep 19;23(1):469. doi: 10.1186/s12872-023-03486-3. PMID: 37726655; PMCID: PMC10510185.
The effect of using mobile health on self-management of type 2 diabetic patients: A systematic review in Iran
Sabahi A, Jalali S, Ameri F, Garavand A, Negahban A.
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Sabahi A, Jalali S, Ameri F, Garavand A, Negahban A. The effect of using mobile health on self-management of type 2 diabetic patients: A systematic review in Iran. J Educ Health Promot. 2023 Oct 31;12:358. doi: 10.4103/jehp.jehp_910_22. PMID: 38143998; PMCID: PMC10743845.
A randomized trial of a theory-driven model of health coaching for older adults: short-term and sustained outcomes
Potempa K, Calarco M, Flaherty-Robb M, Butterworth S, Marriott D, Potempa S, Laughlin C, Schmidt P, Struble L, Harden K, Ghosh B, Furspan P, Ellis A.
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Potempa K, Calarco M, Flaherty-Robb M, Butterworth S, Marriott D, Potempa S, Laughlin C, Schmidt P, Struble L, Harden K, Ghosh B, Furspan P, Ellis A. A randomized trial of a theory-driven model of health coaching for older adults: short-term and sustained outcomes. BMC Prim Care. 2023 Oct 5;24(1):205. doi: 10.1186/s12875-023-02162-x. PMID: 37798658; PMCID: PMC10552322.
Utilisation of self‐care products and practices and its associated factors among stroke survivors.
Sibbritt, D., Steel, A., Peng, W., & Adams, J. (2021)
This study explored the characteristics associated with the use of self-care products and practices by people rehabilitating from stroke. At least one self-care product or practice was used by 39.9% of participants. Female participants were more likely than males to use self-care products and self-care practices. Self-care product use was higher amongst those with higher levels of fatigue and/or those reporting slight or moderate disability, compared to those who had no symptoms at all.
Sibbritt, D., Steel, A., Peng, W., & Adams, J. (2021). Utilisation of self‐care products and practices and its associated factors among stroke survivors. International journal of clinical practice, 75(3), e13821.
Hypertension: What are the self-care and health-care-seeking behaviours in women over time?
Sibbritt, D., Davidson, P., Peng, W. B., Adams, J., & Hickman, L.
The aim of this study was to estimate the prevalence and incidence of hypertension in women, and describe their self-care and health-seeking behaviours. The findings show that women with hypertension are using a range of conventional and complementary and alternative medicine with hypertensive women using more conventional medicine and less complementary and alternative medicine than non-hypertensive women. As such, health-care providers should communicate with their patients regarding their use of complementary and alternative medicine in their efforts to provide safe, effective and coordinated care.
Sibbritt, D., Davidson, P., Peng, W. B., Adams, J., & Hickman, L. (2016). Hypertension: What are the self-care and health-care-seeking behaviours in women over time?. Journal of Human Hypertension, 30(12), 783-787.
Health care utilisation and out-of-pocket expenditure associated with hypertension: an analysis of Australian adults from the 45 and Up Study.
Adams, J., Hosseini, M., Peng, W., & Sibbritt, D.
The purpose of this study was to assess the use of health services and self-care amongst people with hypertension and to estimate the out-of-pocket expenses associated with such health care use. The average total out-of-pocket expenditure for hypertension-related health care was Australian $461.8 per annum, with an estimated Australian $941 million per annum if extrapolated to all Australians aged 55 years and over with hypertension. Older people with hypertension use a wide range of health services to control their blood pressure including conventional medicine, allied health and complementary medicine practitioners as well as various self-care practices.
Adams, J., Hosseini, M., Peng, W., & Sibbritt, D. (2020). Health care utilisation and out-of-pocket expenditure associated with hypertension: an analysis of Australian adults from the 45 and Up Study. Journal of Human Hypertension, 34(12), 833-840.
What is the healthcare utilisation and out-of-pocket expenditure associated with osteoarthritis? A cross-sectional study.
Sibbritt, D., Sundberg, T., Ward, L., Broom, A., Frawley, J., Bayes, J., & Adams, J.
This study examines the use and out-of-pocket expenses resulting from consultations, products and practices across conventional, self-care, and complementary medicine (CM) treatments for osteoarthritis (OA) among Australian women. Australian women with OA use a range of conventional and CM consultations, self-care products and practices to manage their condition, incurring significant out-of-pocket expenses.
Sibbritt, D., Sundberg, T., Ward, L., Broom, A., Frawley, J., Bayes, J., & Adams, J. (2022). What is the healthcare utilisation and out-of-pocket expenditure associated with osteoarthritis? A cross-sectional study. BMJ open, 12(3), e055468.
The health care utilisation and out-of-pocket expenditure associated with Australian stroke survivors aged 55 and over.
Sibbritt, D., Hosseini, M., Peng, W., Bayes, J., & Adams, J.
The aim of this study was to assess the use of healthcare services, self-care practices and out-of-pocket expenses associated with post-stroke healthcare. Post-stroke individuals used a wide range of health services and various self-care practices for stroke rehabilitation and such healthcare utilisation is associated with significant annual out-of-pocket expenditure.
Sibbritt, D., Hosseini, M., Peng, W., Bayes, J., & Adams, J. (2022). The health care utilisation and out-of-pocket expenditure associated with Australian stroke survivors aged 55 and over. Plos one, 17(3), e0265907.
Health behavior change and complementary medicine use: national health interview survey
Bishop, F. L., Lauche, R., Cramer, H., Pinto, J. W., Leung, B., Hall, H., ... & Adams, J.
This study aimed to determine the extent to which patients report that CAM use motivates them to make changes to their health behaviors. A sizeable proportion of respondents were motivated by their CAM use to undertake health behavior changes. CAM practices and practitioners could help improve patients’ health behavior and have potentially significant implications for public health and preventive medicine initiatives; this warrants further research attention.
Bishop, F. L., Lauche, R., Cramer, H., Pinto, J. W., Leung, B., Hall, H., ... & Adams, J. (2019). Health behavior change and complementary medicine use: national health interview survey 2012. Medicina, 55(10), 632.
The use of self-management strategies for stroke rehabilitation: a scoping review.
Rahman, M. S., Peng, W., Adams, J., & Sibbritt, D.
This scoping review provides an important overview on stroke survivors’ use of self-management strategies and their experience. Their use of self-management strategies is complicated and multifaceted, comprising several domains and involving a diverse range of approaches and personal experiences. However, we identified several gaps in the literature and more research is required.
Rahman, M. S., Peng, W., Adams, J., & Sibbritt, D. (2023). The use of self-management strategies for stroke rehabilitation: a scoping review. Topics in Stroke Rehabilitation, 30(6), 552-567.
Formal and informal healthcare behaviours of women with chronic illness: A cross‐sectional analysis of 1925 women.
Adams, J., McIntyre, E., Frawley, J., Lauche, R., Broom, A., & Sibbritt, D.
Adams, J., McIntyre, E., Frawley, J., Lauche, R., Broom, A., & Sibbritt, D. (2019). Formal and informal healthcare behaviours of women with chronic illness: A cross‐sectional analysis of 1925 women. International journal of clinical practice, 73(4), e13343.
The health care utilization and out-of-pocket expenditure associated with asthma amongst a sample of Australian women aged over 45 years: analysis from the ‘45 and up’study.
Adams, J., Steel, A., Frawley, J., Leach, M., McIntyre, E., Broom, A., & Sibbritt, D.
Adams, J., Steel, A., Frawley, J., Leach, M., McIntyre, E., Broom, A., & Sibbritt, D. (2021). The health care utilization and out-of-pocket expenditure associated with asthma amongst a sample of Australian women aged over 45 years: analysis from the ‘45 and up’study. Journal of Asthma, 58(7), 865-873.
Characteristics of women with sleeping problems and comorbid chronic health conditions: Results of a survey of 1,925 mid-age and older women.
Adams, J.
Adams, J. Characteristics of women with sleeping problems and comorbid chronic health conditions: Results of a survey of 1,925 mid-age and older women.
The significance of complementary and alternative medicine (CAM) as self-care: Examining'hidden'health-seeking behaviour for chronic illness in later life.
Adams, J., Kroll, T., & Broom, A.
Adams, J., Kroll, T., & Broom, A. (2014). The significance of complementary and alternative medicine (CAM) as self-care: Examining'hidden'health-seeking behaviour for chronic illness in later life. Advances in Integrative Medicine.
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